Transcript Serge Bignens – MIDATA Ecosystem

MIDATA.COOP
my DATA our Health
André Golliez
François von Kaenel
Serge Bignens
Opendata.ch
BFH, Institute for Medical informatics
BFH, Institute for Medical informatics
Use case 1: MIDATA for Patient follow-up
Citizen/Patients:
Adepositas, stomach bypass
Health Professionals:
Bariatric surgery, University Hospital Bern, Switzerland
Functions:
Patients document and share their
activity and well-being after surgery
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The people who did the project ...
Adrian Wyss
Aline Zaugg
Adipositas is a WHO recognized disease
Numbers in Switzerland
▶
Population with overweight (BMI >= 25):
▶
▶
▶
30.3% im Jahr 1992
41.2% im Jahr 2012
Source: Bundesamt für Gesundheit, abgerufen am Montag, 2. November 2015
MIMOTI – „Mini Motivation“
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Use case 2: Tests on multiple sclerosis
Use case 3: citizen science genome/olfactory capab.
Use case 4: Drug rehab program
Use case 5: Recorvery between chemotherapies
Use case 6: Physiotherapie exercice monitoring
Use case 7: Top Athlete’s health and performance
Use case 8: Hypertension prevalence in Ethiopia and Ghana
Use case 9: Personal glycemia Index
Use case 10: …
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What do those use cases have in common
Data protection
Data sharing
Mobile access through Apps
TRUST
Citizen empowerment
Added value
Open platform with clear governance
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MIDATA ecosystem for innovation
3rd Party
Apps
General
Assembly
Ethics
committee
Governance
rules
3rd Party
Apps
MIDATA Platform
Data storage, management, visualization
consent and access management
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3rd Party
Apps
Developed
with & by partners
Developed by
ETHZ & BFH
MIDATA.coop – A new trust-promoting framework
Citizen owned
• Cooperatives
Not for profit
• Revenues are reinvested for
the benefits of members and
society
Transparency
• Transparent governance
Secure
• Data encryption
Regional
• Regional MIDATA cooperatives
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MIDATA Value chain
Account
holders
Provides
cloud services
Provides
data according
to owner’s
consents
Can give
consent to
secondary use
Citizen
Allows registration
as account holders
MIDATA
Cooperative
Data consumer
Pays for data
society
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Contributes to the generation of published knowledge
+ can found projects
MIDATA platform architecture
Smartphone 3rd Party Apps
Quanfied
self
App
Coaching
App
Treatment
App
MIDATA Portal
…
Research
Portal
Pa ent
followup
App
FHIR API
MIDATA Server(s)
Data Services
and
Access Management
3rd Party
Data
Sources
Anonymized
export
Lifestyle
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Health
Others
.
Analy c
DB
Contact information
Prof. Serge Bignens
Institute of Medical Informatics, University of
Applied Science Bern
[email protected]
@sbignens
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