Transcript Samantha Walker

EARIPEuropean Asthma Research and
Innovation Partnership
Dr Samantha Walker (Asthma UK)
“Does innovative research for allergy and respiratory disease in the
European Union benefit patients?” - 17th June 2014
Why asthma?
• 30 million people with asthma in Europe
• By 2020 approximately 120,000 people in Europe will die of an
asthma attack and over 4 million hospitalisations will be needed
by those most severely affected
• Treatment costs about €20bn annually and lost productivity costs
€9.8bn per year
• There are no effective treatments for about 5% of people with
asthma, and we have had few new breakthrough drug treatments
• The treatments are not always appropriate (because the
phenotypes of asthma are not well characterised, and because
existing drugs/treatment regimens may be inappropriate for many,
amongst several reasons)
The EARIP project
• Co-ordinated by Asthma UK
• 12 partners from across
Europe
• €500,000 grant, funded under
the FP7 programme
• Supported by 50+ consortium
members
EARIP - Aims
To define the activities and investment
needed to:
• Reduce asthma deaths in Europe by 25% within
10 years and 50% within 20 years
• Reduce hospitalisations by 50%
• Increase optimum self-management (through
uptake of self-management plans) by 20%
• To increase funding for asthma research across
Europe
EARIP Work Packages (WP)
Clinical &
translational
Biological
Structural
EARIP
The approach to address the
asthma ‘problem’ in Europe
WP1 co-ordination & dissemination
WP2 - Identify better ways to develop new biological targets and use existing ones
more effectively
WP3 - Understand asthma phenotypes with a view to developing better treatments
WP4 – Criteria to develop better and more efficient healthcare systems across Europe
for people with asthma
WP5 - Define and agree plans to improve diagnostic and patient self-management
tools
WP6 - Agree pan-European asthma research priorities to create an asthma roadmap so
that researchers know what to focus on
WP7 - Establish what is needed to create a European Innovation Partnership (EIP) for
the management of asthma
WP8 - Create a proposal to establish a European network of clinical asthma research
facilities
Patient representatives
• Patient representatives in each WP
• Training and support provided by Asthma UK
and EFA
• Attend workshops to provide input and review
the reports and outputs of the WP’s
• Meet annually to discuss the overall direction of
the project
• More widely patients will be asked to complete
surveys associated with work package activities
Project progress
• M10 of the project & progress across all
WP’s:
-
WP2&3 workshop at the EAACI congress
WP4 completed review
WP5 working groups formed
WP6 survey – June 2014
WP7 influencing and stakeholder mapping
WP8 survey – July 2014
Any questions?
Please get involved
Email: [email protected]