Transcript CAREGIVER EDUCATION - neosho.edu

WELCOME
Caregiver you are a gift
 Presented by Neosho County Community College
 Karla Jamison RN, BSN
This project is funded in part (79%) by a grant under the President’s High Growth Job Training Initiative, as implemented by the
U.S. Department of Labor’s Employment and Training Administration.
CAREGIVER
THE
GIFT OF
CARING FOR OTHERS
CARING FOR YOURSELF
Gift of being a caregiver
 This class will assist you to become better at your job as
a caregiver. You will be able to understand how to
assist others without burnout.
You are a gift.
CAREGIVER EDUCATION
 This program’s goal is to educate the caregivers.
 Enabling caregivers to care for their loved ones, and
themselves.
 They will learn techniques to empower themselves to
accomplish this goal with their resources and the
resources of the community.
Goals of Program
 1. What types of caregivers are out in the community?
 2 . What a caregiver does and what is your worth.
 3 . Why more people are choosing home or assisted housing for
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their place of care.
4. The impact of care giving on the family and care provider.
5. Direct and indirect costs to the family unit with an ill
member.
6. The impact of loss to all members of the family unit.
7. How to make the daily tasks of care giving easier.
8. How to make the daily tasks of care giving more organized.
9. How modern conveniences can help with care giving tasks.
10. Caring for yourself.
11. The goal of a successful caregiver!
1. What types of caregivers are out
in the community?
 Relatives- by blood or marriage
 Significant others
1. Friends
2. Lovers
3. Ex-spouse
4. Neighborhood families
5. Church families
 Paid Caregivers
Paid caregiver
Someone you pay to care/live with your
loved one
 In home interim care
 In home based state care for the frail
elderly or developmentally disabled
 In your home or assisted living
 You can have paid caregivers in your
home or assisted living
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Insurance or Medicare/Medicaid paid
caregiver
 Short term
 Must meet criteria
1. unable to leave home
2. must need a skilled service
1. Therapy –physical, occupational, or speech
2. Nursing-education, injections, wound care,
etc…
3. Need someone to help provide care when
caregiver not there
4. May be co-pay with insurance
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Long Term Care Insurance
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Is any in home care included?
Is assisted living and nursing home both in
policy?
 What is the criteria?
 Read the policy !!!
 Ask your vendor about services ???
 Ask if this is regular insurance coverage or
is it same as medicare services?
Medicaid HCBS services
 Criteria
Less than $2000 in assets
Spouses can split assets
Assets can be seized by the state recovery fund if not in
home long enough after use of the funds
Includes all assets: car, house, personal property of value
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 Who to talk to
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Social and rehab services
Area Agency on Aging
Care needs based on need (amount of time given to the
client)
 First come first served
 Usually a waiting period until funds available
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Vendors in this area
 Get book from Area Agency on Aging
 http://www.agingkansas.org or 800-432-3535
 Resource Guide for Seniors
 Explore Your Options
 Misc. other resources
 Lists Nursing Homes , Assisted living, Home Plus
 Lists Home Health agencies
 Lists Organizations for local area to assist with needs and
where to go
 Lists equipment suppliers
 Lists your rights, consumer information, financial assistance,
housing, legal assistance, ect…
2. What a caregiver does and
what is your worth?
A. Companion
B. Assist with ADLs
C. Manage needs of
household
D. Liaison
E. Finance assistant
A. Companion
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Shoulder to cry on
Hands to hold and person that touches them
Hugs
Physical touch—pat ,contact to skin, backrub, ect…
Visiting daily about everything from personal needs
to illness
 daily needs and desires
 normal conversation
 fears and hopes
B. Assist with ADLs (Activities of Daily Living)
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Toileting and incontinent care if needed
Hair care
Bathing
Walking
Transferring- if unable
Using wheelchair for mobility
Dressing
Assisting at meal time as needed
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AM and PM care
 wash face
 brush teeth and floss – denture care
 cleanse as needed to prevent body odor
 apply toiletries such as deodorant and colognes
 reposition as needed—Every 2 hrs
 feeding-cooking
Cont.
B. Assist with ADLs
 Chauffer
for physician visits or for any
activities or secures rides
 Delivery driver for groceries, meds, and ect…
 Handles finances
 Prepares meals and clean up
 Cleans house
 Laundry
 Medication administration and setup
 Organization of care schedule
 Decision making for the ill loved one
C. Manage needs of the household
 upkeep
on house
 upkeep on yard
 upkeep on the automobile or securing
other means of travel-(w/c van ect…)
 Ensure that bills and utilities continue to
be paid
D. Liaison for the ill patient
 Working with Doctors and other healthcare workers
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Understanding the disease
Understanding the treatment
Understanding medication regime
Understanding the signs and symptoms of disorders
Understanding death and dying
 Communicating with the family members
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explaining about disease process
explaining about the treatment
explaining limitations and needs of ill loved one
explaining about medications and usage
explaining to family members about finances and needs
E. Finance Assistant
 Checkbook
• deposits
• check account management
 Paying
bills
• consumer accounts
• rent or mortgages
• utilities
• taxes
• medical care- physician bills &
medication costs
 AVENUES OF ASSISTANCE
 Groceries—Special diets can be costly
• Food Pantries
• Angel food program
 Toiletries/Laundry Products/etc
• Food pantries at Salvation Army, Churches, and community groups
• These are harder to obtain due to some places are limited on supplies
 Medicines
• Medicare D
• Medicine programs
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Companies-- 90 days supply for lower prices
Drug companies medications - will send with the help of physicians
Physicians offices- samples from med representatives. Especially for short term items like
antibiotics
Community help agencies
 SRS has a list
 Counties often have programs through misc organizations
 Programs to assist with med costs even if minimal costs are difficult
 Utilities
• Programs to assist with med costs even if minimal costs are difficult
• Fixed payment plans
• Limited services on phones
• Using LEAP to assist
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Government program to assist with utilities each year –refunded costs for low income
Budgeting for fixed or limited income when
costs are more expensive than ever before
 physician
bills
 medication costs
 grocery costs
 less income than ever before
 staying at home instead of working
 disability insurances and other
coverage's end
The worth of a care giver !!!
 Unable to calculate your worth!!
 Too many jobs to imagine the worth!!!
 Money could not pay for what you do!!!
 Your only payment will be Love and the only way you
would do this is for the sake of Love and Concern for
others above yourself!!!!!
3. Why more people are choosing home or
assisted housing for their place of care
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More independence
Want to stay home as long as possible
Personal setting- own room and house things they are comfortable
with
Pets can be close
Family with them or them with family
Can keep personal possessions with them-more space
More choices about what they want to be carried out daily
Can carry out their routine not that of the facility– meal times, bath
times, ect…
Cheaper than Long Term Care
 Average Cost of LTC- $ 130 -190 a day
 This is for Private Pay --Includes:
 Room and Food
 No Medication
 No Supplies- briefs, dressing supplies, Oxygen, ect…
COMPARE THE COST
 Average Cost of LTC- $ 130 -190 a day
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This is for Private Pay --Includes:
 Room and Food
 No Medication
 No Supplies- briefs, dressing supplies, Oxygen, ect…
 Cost of Assisted Living
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High—Specialty Care-$150 a day
Low ---$85 a day
 Does not count the special needs that are contracted for the person-these residents
are to be able to be independent
 Baths
 Medicine setup
 Laundry services
 Cost of private paid caregivers (often only use as needed or a few hours a day)
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Low-$10 hr
High-$15 hr
 Cost of a caregiver from agency(often only use as needed or a few hours a day)
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Low-$15-20
High-$20-25
4. The impact of care giving on the family
and care provider.
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May need to leave job-especially toward end of life
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FMLA-Family Leave Medical Act
 must work one year at your job
 papers must be filled out
 no guarantee the job you left will be the one you come back to
 Set number of weeks leave- then it is completed
 To be paid--may have to use vacation before or during FMLA
 To be paid--may have to use sick leave for FMLA
 criteria for FMLA
 small companies —ask human resources
 large companies —ask human resources
The impact of care giving
 Loss of income
 Loss of work related relationship
 Loss of freedom
 Exhaustion from 24 hr a day care
 Expectations that feel overwhelming
 Family members often criticize instead of assist with
cares
5. Direct and indirect costs to the family unit
with an ill member.
 Direct Costs
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Financial
Time
Freedom
Stress
Sleep
Loss of peace of mind
 Increases Stress- uncertain future
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Strained relationships– with ill loved one and with other family members
Unexpected expenses
Loss of privacy
More travel- Dr appointment, ect…
Unexpected problems– things that you do not think may occur– family
events even holidays are not the same. –Need a caregiver to stay if you
leave.
6. The impact of loss to all members of the
family unit
 Dr Elisabeth Kubler-Ross "On Learning from Death
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& Dying“ studied death and dying and found that all
individuals suffer losses in the same way.
Denial
Anger
Bargaining
Depression
Acceptance
The ultimate lesson all of us have to learn is
unconditional love, which includes not only others but
ourselves as well.
7. How to make the daily tasks of
care giving easier.
 Bed making
 Incontinent Care
 Catheter Care
 Repositioning
 Ambulating Safely
 Bathing
 Transfers
 Infection Control
 Medication
 Vital signs
8. How to make the daily tasks of
care giving organized.
 Get a calendar or a date book
 Appointments
 When you need to perform procedures
Use as a diary for doctor visits
 Record Vital signs
 Add to date book- Blood Glucose readings
 Weights
 Visitors like nurse visits, ect…
 Dates others can come to give respite care for
shopping ,ect…
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Being Organized
 Make a daily routine.
 When people are ill it helps them remember what is
going to happen and what to expect. (If they have
memory)
 Repeat the same words and schedule--- it keeps
everyone on the same page
 Make sure everyone understands it is easier when
everyone that helps does the same routine.
Being Organized
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Wash face and hands
Clean mouth and teeth or dentures
Toilet and refresh perineal area
Clean clothing and bedding as needed
 Breakfast
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Clothing Protector
Help set up food and feed as needed
Cleanse hands and face
Offer plenty of fluids except if on fluid restriction
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Offer fluids and snacks
Cleanse face and hands after snacks
Offer toileting and cleanse
 Noon Meal
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Clothing Protector
Help set up food and feed as needed
Cleanse hands and face
Offer plenty of fluids except if on fluid restriction
Being Organized
 Mid Afternoon
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Offer fluids and snacks
Cleanse face and hands
Offer toileting –cleanse and freshen perineal area
 Evening Meal
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Clothing Protector
Help set up food and feed as needed
Cleanse hands and face
Offer plenty of fluids except if on fluid restriction
 PM Cares– Bedtime Cares
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Offer fluids and snacks
Cleanse face and hands after snacks
Offer toileting and cleanse
Back rub
Calm atmosphere
Calming or enjoyable music or sounds like nature sounds-waterfall-rainocean-ect…
9. How modern conveniences can help
with care giving tasks
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Lifts
Gait belt
Lift sheets
Lift/Incontinent pads
Briefs
Electric beds
Bedside toilets
Bedside bathing and hair washing
Bedpan/ Urinals/ Catheters
Wet Wipes /warmers
Creams and emollients
Skin Protection area
10. Caring for Yourself
 Your needs
 Physical
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Rest & sleep
Naps
Bedtime
Energy
Nutrition and fluids
Elimination
Oxygen
 Emotional
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Someone to talk to
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Time to yourself
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Respite care—time off
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Possible needs for medication
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Anxiety
Depression
Pain
Your disease processes
Caring for Yourself
 Spiritual
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Church to become involved
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Talk to spiritual friends on the phone
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Continue to attend church –get sitters from family and friends
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Pray and follow your faith, whatever it is
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Gives you strength to carry on
Provides you with comfort and peace in times of trouble
 Respite Care
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Family and others involved
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Schedule changes ahead of time for days off
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Schedule weekend caregivers
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Paid caregiver
Family caregiver
This will help you be a better care giver
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Refreshed
Renewed
Fresh view of situation
11. Goals of Successful Caregiving
 Personal Goals
1. What do you want to occur in this situation
2. What will you do after
3. Focus on these goals
 What does the family expect of you
1. Your responsibility
2. Family responsibility
3. What if outcome is not as desired
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Family meeting and agreement on possible outcomes
Goals of Successful Caregiving
 What does the ill loved one want done
1. Living wills
2. Advance directives
3. What they told family and you
4. What will happen if death would occur
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Who will handle this
What will happen before occurrence
Hospice –symptom and cost control
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Support for all- family and the patient
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DOES NOT MEAN YOU HAVE TO DIE!!!
Goals of Successful Caregiving
 Live life as you and your loved one would want
 Do not live up to anyone else expectations
 Enjoy life with illness like you enjoyed life before----
Thing and situations have changed
No Matter What!!
 YOU ARE
STILL YOU!!!!!!!!!
Life is Fragile as the petals of these flowers.
Remember to count the blessings.
Remember to savor the wonderful fragrance of
living each day.
Do Not Let Illness
stop you from
Laughing
Crying
Sharing
Loving Others
And Living-Really
Living!!
Thank You